Decoding Dyslexia: A Rose By Any Other Name

  • 16 December, 2015
  • 63 Comments

Blast from the Past: First published December 16, 2015; re-issued September 13, 2017. This explanation of dyslexia seems especially pertinent given the recent documentary from American Public Radio (go to Publications: Audio/Video on this site to listen to that). It elicited a lot of comment at the time and the only thing I would change in it now is the estimate of the phonological/phonemic awareness role in reading problems. There are some more recent data in relatively large studies suggesting a somewhat lower incidence of these problems at least with some populations; that wouldn't change the overall thrust of this much, but it would be, perhaps, more accurate.

 

Teacher Question:

As I watch the Dyslexia Awareness movement gain momentum and grassroots organizations such as Decoding Dyslexia spur the movement on... I am feeling an increased urgency to take a long hard look at students under my watch that struggle with reading and are eventually diagnosed with a “specific learning disability.” I find myself in agreement that so many public school structures and teacher awareness do NOT include dyslexia. In fact, the term is avoided. I am interested in becoming trained in literacy instruction methods that are geared toward the dyslexic brain and I am looking into Orton-Gillingham training since it is focused specifically on the needs of dyslexics. Why don’t reading professors and reading specialists emphasize dyslexia?

Shanahan response:

          Dyslexia is a serious problem and one deserving instructional attention. The term dyslexia has been, justifiably, controversial, and has consequently been avoided by most reading educators—including me. The reason for its gingerly handling is that it is a description of reading disability that includes etiology; that is, an explanation of cause.
          Dyslexia refers to a neurologically based disorder. The idea is that dyslexic students’ brains fail to process information properly or well and that this causes their difficulty in learning to read. The definition is somewhat circular because the purported brain problem is not actually measured… it is inferred from the reading problem. Thus, neurological processing problems cause low reading ability and we know the student has a neurological processing problem because he is struggling to read.
           Contrast, dyslexia with its well-respected sister alexia. Alexia is a reading problem caused by a neural injury. The person could read or seemed to be learning to read just fine, then a spike went through his/her brain and since then, there has been a reading problem. Alexia is a learning problem acquired through neurological injury, while dyslexia is a learning problem caused by an assumed neurological problem. That’s why dyslexia is sometimes referred to as “minimal brain dysfunction” or “minimal brain injury.” (Even with all of the new brain technology and research, we do not have a procedure that can reliably identify which brains are going to struggle in learning to read.)
           That would all be fine if neurological problems were the only phenomenon that interrupts literacy learning. Unfortunately, they are not. For instance, poverty can disruptive learning, and, of course, there is just good old lousy teaching (dysteachia?).
           Under U.S. law, dyslexia does not include learning problems that result from “visual, hearing, or motor disabilities, mental retardation, emotional disturbance, or environmental, cultural, or economic disadvantage.” This meant, for example, that kids could not receive special education for dyslexia if they had low IQs, because their reading problems may have been due to their limited mental functioning.
           But what constitutes cultural or economic disadvantage? What a strange brain malady, indeed, that can only be acquired by those whose families have lots of money—flying over the houses of boys and girls living in want. 
          I’m not claiming dyslexia doesn’t exist or that no reading problems are neurological in nature and genetic in basis—yes, Virginia, I do believe in dyslexia. But labeling kids as having neurological deficits is not helpful unless there is some specific teaching response that diagnosis instigates.
           That’s where Orton-Gillingham supposedly comes in. But before dealing with whether O-G is the one true way to teach dyslexic students, let’s take a last detour in thinking about dyslexia.
           There are scads of studies revealing that dyslexia is phonological in nature. That is, students with this disorder have a particularly difficult time perceiving phonemes and coordinating this perception with the letters on the page. English is an alphabetic language, so not being able to easily connect these bits of information neurologically is a real problem. (The research also suggests that is not the only problem--at least in the long run).
          But doesn’t that mean that I’m talking out of both sides of my mouth? Didn’t I just say that a problem with the dyslexia diagnosis is that it doesn’t tell you what or how to teach, and then I turned right around and said that dyslexia is basically a decoding issue? If that’s the case, then why not just teach these students phonics and be done with it?
           The problem with that reasoning is that NICHD research suggests that when elementary kids have reading problems, they tend to be problems with phonological awareness and decoding about 86% of the time. That means that it is an instructional need of most young kids who struggle to read, no matter what the etiology. Even those who are struggling due to poverty or bad teaching are likely to get tripped up by their decoding needs.
           But wasn’t Orton-Gillingham created to address the specific phonics needs of kids with dyslexia? It was. It was created in the 1920s and was aimed specifically at helping children to see words properly (at the time they thought dyslexics were seeing words backwards—that’s not the case, which shows how dicey this whole idea is of prescribing instruction aimed at particular brain maladies).
            In my reading of the research, I see that O-G has been effective, in some cases, in improving the reading ability of struggling readers. I have also seen research in which it was not so effective (though in fairness, O-G has been evaluated with disabled readers whose difficulties were particularly severe--that has not been true of other phonics-based approaches). 
           But there is no research showing that O-G is more effective than other thorough, structured programs aimed at teaching phonological awareness and decoding. In fact, there are many such programs available (look at the research evidence provided by the What Works Clearinghouse). 
           I have heard from many parents during the past year providing testimonials to O-G based on their experiences (which usually included fights with their local school to obtain a sufficiently thorough and powerful decoding program for their child). That O-G worked with their child demonstrates that it can work. That O-G has not consistently done so in the research shows it is not the cure all some may claim, and that research has supported the effectiveness of so many other instructional procedures (including those that are not multisensory) for teaching such children, suggests that O-G may not even be the best response to their needs (though we don't know that yet).
          What should not be happening is fights between parents and schools over whether to address these children's decoding needs. Whether we call it dyslexia or just a reading problem, it will not likely be outgrown and explicit teaching of decoding skills is quite often an appropriate part of the solution.

Comments

See what others have to say about this topic.

Harriet Apr 10, 2017 08:14 PM


In Progress in Understanding Reading: Scientific Foundations and New Frontiers Keith Stanovich supports your conclusion. As for dysteachia, in Early Reading Instruction: What Science Really Tells Us About How to Teach Reading, Diane McGuinness traces reading difficulties back to two sources: our English spelling system and how it is taught. In the introduction to McGuinness's Why Our Children Can't Read and What We Can Do About It: A Scientific Revolution in Reading, Steven Pinker says “Children are wired for sound, but print is an optional accessory that must be painstakingly bolted on. This fact about human nature should be the starting point for any discussion of how to teach our children to read and write." That's why I teach letter sounds but not names.

12/17/15

Tracy Brazda Apr 10, 2017 08:15 PM

Tim,

Thank you for mentioning Orton Gillingham. AFTER 16 years as an elementary general and special education teacher with a master's degree in curriculum and instruction and an educational specialist's degree in teaching reading, I discovered OG. It rocked my professional world, and I never looked back. In my experience, OG effectiveness is directly correlated with the therapist's training record. Have you knowledge of research that dis-aggregates OG success rates based on the amount of teacher training in the classic OG model? I have yet to meet the student fo whom a true OG approach failed.

Tracy Brazda
K-12 Instructional Coach
Carmel, IN
12/17/15

Timothy Shanahan Apr 10, 2017 08:15 PM

No, no such research has been reported. The one pattern that I have seen is the one mentioned in the post--when OG has not been effective in studies that I have read, the population of students has been especially disabled and it is unclear if anything else would have worked (or if a better trained contingent of OG instructors would have been any more effective).

12/17/15

Unknown Apr 10, 2017 08:16 PM

Dear Shanahan on Literacy - I run a dyslexia therapy center in Iowa, and I am an active member of Decoding Dyslexia. I want to thank you for being so honest in your article, and asking the deep questions that many in literacy have about dyslexia. Especially those who have not been trained in dyslexia, and are just starting to delve into this. I want to take the time to answer some of your questions. Dyslexia can be diagnosed by a Speech-Language Pathologist. At our clinic we give about 6-7 hours of testing, and we look at discrepancies in the child's listening comprehension and oral comprehension versus their reading comprehension. Most of our kids show a large discrepancy. We check phonological wiring using a state of the art test called the CTOPP2. Usually the kids show abnormally low skills in this. Then we use the Woodcock Johnson tests and a few others to measure their reading, writing, spelling and processing speed. From these tests, we can see a well-rounded picture of if the child has dyslexia. They usually have normal intellect, can comprehend what is being said in the classroom, but can not read, write and spell at a level that is indicative of their IQ. This is tell-tale dyslexia. Dr. Orton, who studied stroke victims, saw this same phenomena, and he developed his OG system to address the neurological weaknesses of dyslexia. When science could view the reading brain via fMRI's, it could see that his structured, systematic, multi-sensory approach to teaching the structure of the English language actually changed the wiring in the dyslexic brain and forced it to go to the left side area that is best for reading. These programs do work, because they do address the exact etiology of the disorder. We can see, without a doubt, from birth, that children with dyslexia, have a different brain structure. They have less neural wiring to the left side of the brain, and they have more wiring on the right side of their brain. When learning to read, their brain tries to use centers on the right side of the brain. Science has come to learn that the most efficient areas of the brain to use for reading is the left side. The OG programs force the student to have to start going over to the left side of their brain to read. Given 100-300 hours of OG, the child will build the wiring over to the left side of the brain, and begin to read this way. I get my research from Dr. Nadine Gaab, Dr. Joseph Torgesen, Dr. Stanislaw DeHaene as well as the Shaywitz's, Dr. M. Casanova, and Dr. MaryAnne Wolf. Google any of these researchers, and you can spend 7-8 years reading a plethora of fascinating data. I have two children...one dyslexic, and one not. The dyslexic child had to learn how to read using an OG program. The non-dyslexic one...no...the program was too much detail, an overload, not what she needed. When I tutor dyslexic kids, they may spend 12 months mastering the short vowel sounds and diagraphs (the severe ones). Yes, this is truly a wiring difference in the brain. The disorder does tell us how to teach. It tells us that a multi-sensory, systematic, cumulative and STUDENT-paced program will build the wiring to the most efficient centers in the brain to read. My son wanted to know why some words end in ck (like sock and luck), and others didn't (like junk and dark, and panic). We have 9 different ways to spell the long e sound in the English language (e, ey, y, ee, ea,ei, ie, e-e, and i). Currently our spelling programs try to teach this to kids in a matter of 2-3 weeks in a hodge-podge of methods. A dyslexic kid will spend months trying to sort through the logic and illogicalness of this spelling system.

12/17/15

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Decoding Dyslexia: A Rose By Any Other Name

63 comments

One of the world’s premier literacy educators.

He studies reading and writing across all ages and abilities. Feel free to contact him.

Timothy Shanahan is one of the world’s premier literacy educators. He studies the teaching of reading and writing across all ages and abilities. He was inducted to the Reading Hall of Fame in 2007, and is a former first-grade teacher.  Read more

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